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#21 davelew

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Posted 06 March 2023 - 09:12 AM

Any cancer is bad news, but leukemia in Boston is less bad news than most.  The first treatments of leukemia were pioneered less than ten miles from you guys, and Boston is still at the forefront of a lot of cancer research.  Here's hoping that your daughter has one of the more treatable types.



#22 porter

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Posted 06 March 2023 - 09:15 AM

Thoughts and best wishes. Please keep us up to date with what's going on for sure.



#23 Vagus

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Posted 06 March 2023 - 12:31 PM

Vibes, man :(



#24 cavman

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Posted 06 March 2023 - 01:08 PM

Any cancer is bad news, but leukemia in Boston is less bad news than most. The first treatments of leukemia were pioneered less than ten miles from you guys, and Boston is still at the forefront of a lot of cancer research. Here's hoping that your daughter has one of the more treatable types.

APML fortunately the most curable for in adults. She had a second blood transfusion today, and has a lesion on the brain as well. They are not sure if it was caused by the leukemia and infection or other, they are talking a spinal tap to check for MS now. But she's in good spirits and taking it in stride. Thanks guys

#25 maddog

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Posted 06 March 2023 - 03:56 PM

Sorry to hear that she and you will have to go through this. I very much hope for the best possible outcome. 



#26 EWW

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Posted 06 March 2023 - 08:32 PM

I’m sorry to read this and wish you and the family only the best (all things considering)

#27 rockon

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Posted 07 March 2023 - 09:27 AM

Sending Vibes to your family



#28 Enid Puceflange

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Posted 07 March 2023 - 09:54 AM

Vibes



#29 BFB

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Posted 07 March 2023 - 10:32 AM

Vibes turned up to 11



#30 Darterboy

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Posted 07 March 2023 - 11:15 AM

Healing Vibes!



#31 Augie1991

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Posted 08 March 2023 - 05:44 PM

BIG TIME Prayers coming your way cavman!!!  Isaac had ALL T-Cell leukemia.  From a little quick reading, it sounds like APML is highly treatable!  What kind of symptoms led to discovering that she had this type of leukemia??  Feel free to reach out via PM if you need ANY support or have any fundraisers etc!!



#32 cavman

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Posted 09 March 2023 - 10:27 PM

I'm not the fund me type, insurance is covering it and anything extra is just taking care of my child.as an update doing better, off oxygen and meningitis has been ruled out for the brain lesions. Platelets are still low but improving.

Myself I am a bit stressed and how could I not be. But I am confident she will be fine as she will have the best care.

#33 cavman

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Posted 12 March 2023 - 07:46 PM

Red blood cells are down again, but overall good. Chemo has been easy so far but a long way to go. She looks normal though dark around the eyes. Skin color is as usual still need more texting

#34 TonyBrown

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Posted 12 March 2023 - 08:29 PM

Vibes bro. Friends son went thru it, fortunately one of the most treatable things out there. Y’all got my prayers

#35 cavman

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Posted 12 March 2023 - 08:38 PM

Vibes bro. Friends son went thru it, fortunately one of the most treatable things out there. Y’all got my prayers

I know Tony, I stay strong and am confident it will work out. I do worry as well

#36 TonyBrown

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Posted 12 March 2023 - 08:43 PM

I know Tony, I stay strong and am confident it will work out. I do worry as well

:cheers:

#37 positiveContact

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Posted 12 March 2023 - 08:57 PM

I know Tony, I stay strong and am confident it will work out. I do worry as well


One of my old coworkers had a son that went through this and he came out of it. Keep the faith. All my vibes are going your way. Really wish I could actually do something that could have a direct impact. Fuck.

#38 cavman

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Posted 12 March 2023 - 09:40 PM

One of my old coworkers had a son that went through this and he came out of it. Keep the faith. All my vibes are going your way. Really wish I could actually do something that could have a direct impact. Fuck.

crazy I have friends on the boards of of all the major hospitals and it doesn't matter she is getting the best care wvailable.everyone should, part of me is obviously still worried.

Edited by cavman, 12 March 2023 - 09:41 PM.


#39 AspenLeif

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Posted 12 March 2023 - 09:46 PM

Don’t be. My childhood buddy and another dude I worked with went though this. It’s a slog, don’t get me wrong. 30 years later I still talk to them and it’s not even brought up in conversation.

#40 cavman

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Posted 12 March 2023 - 09:51 PM

It's my kid I will be worried at the same time confident in the care.
I know what you are saying though and agree.


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